Disease, Disney, Death and Living On

I know, a very strange and foreboding title for any blog post. Unless you link it to a happy Halloween scenario. That not being the case, all three have to do directly with my current status and I felt an update was due.

As no surprise the progression of my disease has not slowed, only taken on new manifestations which have become more difficult on a daily basis. Many aspects of my daily living activities have now been totally affected from personal habits, dressing,mobility around the home, getting out of bed, transferring from chair to wheelchair and attempting short distances with the forearm crutches. And with all that, experiencing several falls in the last month, sometimes doing damage to myself and others damaging doors, walls while scaring the hell out of my dogs.

As a direct result of the impact and how these symptoms are affecting me I still went on our yearly week at the beach and did not fare well. In addition, my doctor has now discovered and area of concern above and beyond the neurological and brain disease resulting in many X-rays, complete blood work ups, urinalysis, ultrasounds and most recently a CT scan. All contain no surprises and negative results causing even more concern. You will be happy to know the results of the ultrasound showed I was not having twins, not even pregnant and no uterus could be found.  This because someone ordered the wrong tests for the ultrasound.  My next adventure is to my Urologist.  You know, the guy his one finger on the pulse of American males?  Oh joy!



The bottom line, being in a position to travel on our family reunion trip to Walt Disney World and Universal Studios for seven days. The final determination is an emphatic, "Definitely Not!" I will spare you the details of variables and potential health related results should I even attempt it. I was not surprised at this conclusion. More tests and evaluations to come and still facing the unknown on a daily basis.

My finality in this life has really hit home this week with the loss of Steve Jobs of Apple and having to openly admit and say, “I will never be going back to Disney World again.” WOW! It seems there is constant daily adjustment to my health circumstances. Enough on that subject.

For those of you who have read my recently published book, Evaluate, Adapt, And Overcome: Accept No Limits In Life, you will fully understand the significance of this weeks highlight for me. After a great deal of searching I located and purchased "THE" Mickey Mouse Cookie Jar.

Is that not "AWESOME" or what? We are so excited to have found this specific one which was last made in 1980. Would you agree it is much more fun and attractive than the alternatives?



My book is doing unbelievably well to my surprise, especially from a guy who really doesn't know what he's doing. The book is available in paperback by order almost everywhere and in the Kindle Edition through Amazon.com. I am in the midst of cleaning up the Description and Editor Reviews on the Amazon site and should be completed within a couple of days.

Finally, since I will not be going to Disney World, I've given my wife a wish list and have even purchased an item here in Virginia that may not even be carried in the Disney Stores on site. This is the new Mickey Mouse key chain and very impressive. I've had my last small one since 1998 and it really shows the wear. Here is what the new heavy duty key chain looks like.

In celebration of Steve Jobs life, allow me to quote him. “Your time is limited, so don’t waste it living someone else’s life,” Jobs said. “Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.” ~ Steven Paul Jobs ~

Thus so eloquently sums up the key principles to success, happiness, and prosperity. How? By simply not giving permission and allowing others the power over one's life and energy contrary to what one's gut and conscious is screaming. Mr. Steve Jobs changed this world in more ways than with technology and we all thank you. Peace be with you and your family.

We are here but for a moment; but oh what a moment we can make would we only let go, ask and freely accept He who has always been there with us. In the mean time I am "Living On." What does that mean? Living Life On My Terms, No Excuses, No Regrets!